For those of you who read my blogs back in September, You would know that I was diagnosed with Multiple Sclerosis/MS on September 5th, 2016, and today I want talk about my relapse and treatment.
How I was diagnosed?
I had been sick constantly since April of 2016. It was simple things such as dizziness and headache. Now let us fast forward to August 18, 2016. I was running late for school, and almost missed my bus. As I was running to catch my bus, I started to get really dizzy and once I stepped on the bus, I fell flat on my face. When I fell I had bumped my tibia and it had bruised.
On August 30th, 2016, My leg was hurting so I decided to stay home from school. As the day went by my leg started to burn, and I mean really burn. It felt like the inside of my leg was set on fire, so I decided to go to the emergency room. They couldn’t figure out why my leg was burning, but assumed it was from the damage nerve on my tibia. The doctor gave me a muscle relaxer and to stay home until the following Tuesday. As the days went by I started to slowly lose my senses on my left side. My whole left back and chest were numb to the point the only sensation I felt was a ticklish sensation.
I went back to the emergency room and after testing me they decided I needed to transfer to a sister hospital for an MRI scan. After the MRI scan and LP, they decided to diagnose me with MS.
What I felt after the diagnoses?
The diagnoses didn’t faze me. It really didn’t. I expected to be really sad, but I just got over it.
What is Multiple Sclerosis?
Multiple Sclerosis is an autoimmune disease. It is basically where your immune system starts to attack your own nerves. Here is a medical definition “Multiple sclerosis (MS) is an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body.”
The medications I received
While I was at the hospital they gave me steroids and a medicine called Gabapentin. After taking the Gabapentin for a week, I learned I was allergic to it. I continued to take Vitamins and other medications to help with the MS. My neurologist ordered for me to take an MS medication called Avanex. I’m still not able to get this medication, because my insurance rejected it, so I have to start the process all over. Because I wasn’t able to get the medication, I relapsed.
I went to the hospital on Friday for a routine check-up, but because of the numbness to my left neck and upper arm, I had to be admitted into the hospital to receive 3 doses of steroids. I was officially released yesterday, so yay. I hope I will be able to get medication before I relapse again. My new MRI results show some of the old liaisons had decreased in size but in their place new ones had formed, and the doctors fear that if I don’t get my medication I might relapse. This is very scary for me, so I have an appointment with my neurologist in two weeks to discuss my options.
Multiple Sclerosis Awareness
Multiple Sclerosis is a rare disease and doesn’t get that much funding. In the near future, I hope they will find a cure for this disease. If you want to know more about MS, go to the National Multiple Sclerosis society. They have plenty of information about MS.
Do you have MS? If so what is your treatment plan? How do you deal with some of the attacks that occur? Let me know in the comments below. I have heard of some MS medications, so Which one do you take? My neurologist recommended Avanex for me which is a shot you take once a week.